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H MS c228

Boston Hemophilia Center. Oral History Project. The gift of experience, 2004-2007: Finding Aid

Center for the History of Medicine (Francis A. Countway Library of Medicine)

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Center for the History of Medicine (Francis A. Countway Library of Medicine)

© President and Fellows of Harvard College

Descriptive Summary

Call No.: H MS c228
Repository: Center for the History of Medicine (Francis A. Countway Library of Medicine)
Title: Boston Hemophilia Center. Oral History Project. The gift of experience, 2004-2007
Date(s): 2004-2007
Quantity: 21 audiocassettes (50 electronic files including documents, pdfs, and mp3s.)
Quantity: 2 document boxes
Language of materials: English
Abstract: Includes recordings and transcripts of interviews with 21 hemophiliac men, aged 40 and older, who were patients at the Boston Hemophilia Center, and 5 physicians and nurses.

Immediate Source of Acquisition:

  • Accession number 2007-013, Boston Hemophilia Center's oral history project.November 17, 2006.
  • These records were donated to the Harvard Medical Library by Laura Gray, the coordinator of the project, in July of 2006.

    Processing Information:

    Processed by Virginia Hunt.
    Processing staff in the Center for the History of Medicine rehoused the records in acid-free enclosures, reformatted the sound files into .aif files and deposited the electronic files into the Digital Repository Service (DRS) for storage.

    Conditions Governing Access:

    Access requires advance notice. Some transcripts and oral history recordings are restricted until 2027. Restrictions are noted in the finding aid where applicable. Researchers may apply for access to restricted records. Consult the Public Services Librarian for further information.

    Conditions Governing Use:

    The Harvard Medical Library does not hold copyright on all the materials in the collection. Requests for permission to publish material from the collection should be directed to the Public Services Librarian. Researchers who obtain permission to publish from the Public Services Librarian are responsible for identifying and contacting the persons or organizations that hold copyright. Reference Services and Access Information.

    Preferred Citation:

    Boston Hemophilia Center. Oral History Project. The gift of experience, 2004-2007. H MS c228. Harvard Medical Library, Francis A. Countway Library of Medicine, Boston, Mass.

    Related Records in the Francis A. Countway Library of Medicine, Center for the History of Medicine

    Historical Notes

    Interviews with hemophiliac men were conducted by Laura Gray and Christine Harland Chamberlain in 2004 - 2007. Interviews were conducted by Laura Gray 2005 – 2007 with a selection of caregivers working with hemophiliac men during the period covered by The gift of experience oral history interviews. Gray conducted the interviews in preparation for her book on the oral history project, The gift of experience. The project was carried out under the auspices of the Boston Hemophilia Center, a federally-funded hemophilia treatment center that offers comprehensive care to people with hemophilia and their families. The Boston Hemophilia Center operates a pediatric site at Children's Hospital Boston and a program for adults at the Brigham and Women's Hospital, Boston.

    Arrangement

    The collection is divided into two series: I. Patient Interviews, 2004-2007 and II. Caregiver Interviews, 2005-2006. Oral histories are listed in each series alphabetically by subject's last name.

    Series Arrangement in the Collection

    Scope and Content

    Includes recordings and transcripts of interviews with 21 hemophiliac men, aged 40 and older, who were patients at the Boston Hemophilia Center. Participants in the project discussed their experiences with living with and being treated for hemophilia. Also includes interviews with five nurses and physicians specializing in hematology and hemophilia treatment, several of whom worked at the Boston Hemophilia Center.

    Container List


    med00066